New RSD-CRPS Projects

This section of our website we will post information regarding any new RSD/CRPS projects that are being done in the RSD/CRPS community.

New CRPS Book Project (as of 3-11-2025)

Hello my RSD/CRPS friends,

I would like to inform you that Dr. Alaa Abd-Elsayed and I are in the process of writing our eighth book regarding CRPS patient stories.

We would like to hear from anyone who would be interested in having their personal CRPS story published in our new book.

Sharing your CRPS journey through this publication can significantly aid fellow patients in managing their pain. It can serve as a valuable resource for the medical community, enhancing their understanding of this painful syndrome. Additionally, it provides essential insights for patients, their families, and friends, fostering a deeper awareness and empathy towards the challenges faced by those living with CRPS.

The following criteria is needed to submit your story:

How did you develop your CRPS (trauma or surgery)?
How long have you had CRPS (date of onset)?
Type of surgeries you may have had. (Amputation, back surgery, carpal tunnel surgery, knee surgery, shoulder surgery, etc.).
What type of trauma did you have (soft tissue injury, crush injury, Venipuncture injury (needle injury), etc.)?
What treatments have helped or not helped? (Please write about your treatments, therapies, opioids, procedures (nerve blocks, SCS, infusion pump, sympathectomy, psychological treatment, dates, and duration of treatments).
How has CRPS changed your life? (For example, divorce, addiction, losing your job, becoming homeless, suicidal, etc.).
If you know of a CRPS patient who had committed suicide or died from complications due to CRPS, we would like to get in touch with their family.
You can write as many pages of your story as you would like, and please add a title for your story. All stories require a title.
Please feel free to add a few photos of your affected extremities (there photo’s will be used in our next volume of the CRPS Picture eBook series).
For your story you have an option to use your first and last name, just your initials, or you can be anonymous. (Please choose and let me know which option you are most comfortable with using for your story).
In regards to using a doctor’s name in your story, you need to have their written permission (this needs to be sent to us) to use their name or you can just use their first and last initials in your story (example: Dr. B or Dr. E.B. or you can just say my Neurologist, Orthopaedic, or my Surgeon, etc.).
In regards to using a doctor’s website, it can only be used if you have written permission from the doctor to use his/her website address (this needs to be sent to us). If you do not have written permission, we will have to remove it from your story.
If you have your own website address for an RSD-CRPS group, it can be used to help promote awareness for RSD-CRPS.
Please submit all stories in either a Microsoft Word document, Google doc, or a pdf file.

The deadline date to submit all stories is Wednesday June 11, 2025.

If you are interested in having your story published or have questions regarding this book project, please contact Eric Phillips by email at utopia33@prodigy.net (please put CRPS Book in the subject line) or by phone or text at 508-479-9888.

Please let me know if you would like me to email you a sample story to use as a guide in writing your story.

We are looking forward to hearing from you.

Best regards,

Eric M. Phillips and Dr. Alaa Abd-Elsayed

New Project (as of 1-1-2024)

Hello my RSD/CRPS Friends,

I would like to share the following information with you.

I was contacted by a good friend of mine named Saja. Saja is a nurse in Israel who works with children with physical disabilities, including children suffering from complex regional pain syndrome (CRPS).

The hospital Saja works for has started a project to help raise money for the development of devices for the rehabilitation of children with physical disabilities.

Saja, has dedicated her life to helping children with physical disabilities, including children suffering from CRPS.

Please view the links below and share them with your family and friends.

I feel this is a very important project to help support. No child should suffer with a physical disability or CRPS.

Thank you for taking the time to view the information Saja has shared with me.

All my best!

Eric

https://www.jgive.com/new/he/ils/donation-targets/116153

Video Link:

https://www.facebook.com/story.php?story_fbid=205005260631083&id=466549296748046&mibextid=FQVVTg