"Dedicated To Helping RSD/CRPS Patients Worldwide"
Our Mission
We hope to assist patients, as well as family, and friends of those who suffer from Reflex Sympathetic Dystrophy (RSD) or more recently known as Complex Regional Pain Syndrome (CRPS). This organization was formed in July 1990; and since then, has sent information regarding RSD/CRPS to hundreds of thousands patients and professionals worldwide. The free information we offer will help educate and inform you, your family, friends as well as your physician regarding the signs, symptoms, diagnosis and the latest methods of treatment for RSD/CRPS.
Hereditary Aspectsof CRPS
Doctor Hooshmand and I have co-authored the following article: Hereditary Aspects of CRPS.
Below is an abstract from the article: Hereditary Aspects of CRPS..
Please click on the link below to view the full text of this article in PDF-format.
Abstract: In a study of 824 complex regional pain syndrome(CRPS) patients treated in our clinic from January 1991 through January 1996, four cases suffering from Ehlers-Danlos syndrome(EDS) were ultimately diagnosed with CRPS (1). Since our report on 824 CRPS patients, we had an additional case referred to our clinic. This case involved twin sisters suffering from EDS-type III (hypermobility type) also diagnosed with CRPS. This additional case gave us five EDS/CRPS cases (six patients) which included two families having other members with both EDS/CRPS.
In our research we have also found five other cases (12 patients) suffering from other diseases such as Fabry' disease(FD), Sjogren's syndrome and lupus erythematosus (LE) that have contributed to these patients developing CRPS.
Over the years there have been very few published reports that have shown the hereditary aspects of CRPS associated with EDS and other diseases. In this article, we will discuss the hereditary aspects of CRPS.
