In, July of 2008 I was contacted by The National
Disease Research Interchange (NDRI) in Philadelphia, PA. The NDRI is involved in
doing tissue research for rare disease such as Reflex Sympathetic Dystrophy
(RSD).
The NDRI is looking for people to make
tissue donations. If you would like you can make a donation when you have surgery or you can make
arrangements before hand to donate your tissue at the time of your death.
I feel that making a tissue donation is a
very import step to help finding a cure for RSD. In fact I will be having
surgery on August 25, 2008 and I have made the decision to donate my tissue to
The NDRI to help with their on going research to help finding a cure for RSD.
Eric
For more information about the
National Disease Research Interchange (NDRI). Please visit
their website site at:
www.ndriresource.org or please
contact:
Sheila Curristin, PhD
Director, Rare Disease Program
The National Disease Research Interchange
(NDRI)
8 Penn Center, Suite 800
1628 JFK Boulevard
Philadelphia, PA 19103
Phone: 1-800-222-NDRI(6374)
Phone: 215-557-7361 Ext: 232