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International Reflex Sympathetic Dystrophy Foundation© "Dedicated To Helping RSD Patients Worldwide"
Eric M. Phillips P.O. Box 1145 Lakeville, Massachusetts 02347 USA Phone: 508-946-9888 Fax: 508-946-3338
Office Hours Monday through Friday 9:00 A.M. to 5:00 P.M. EST
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RSD Stories
This new section of our website will be dedicated to personal stories written by RSD patients and their families. So if you have a personal story that you would like to share with everyone to read, please e-mail your personal story to Utopia33@prodigy.net and I will post it for you. Thanks! Eric
TOS and RSD Story by: Darlene Brownell TOS and RSD what does that mean? I will tell you what it means. It’s the worse pain that you could ever feel every minute of the day. It causing my pain to spread any where it wants to be. I can’t move my arms; they feel like there on fire. The doctors would look at me like I was a liar. My shoulders feel like some one was stabbing me all day and night. I can’t take it any more. God just bring me to the light. The pain is so sever, there is no end in site. Doctor it’s not in my head. Its all threw my body. And now it’s too late, you didn't catch it early. If you would have listened to me when I said I was in pain. I could have had a change in life, to do the things I planned. Because of you I live in pain, not knowing what the next day will bring. If you caught it right a way, I would have been ok. I'm not giving up on this battle of pain I will fight to my dieing day for all of us in pain. The most pain of all is seeing my children growing up as I sit on the side line watching from a far, remembering the days I use to be involved. You took that a way from me, Shame on you all. I really hate to say this but I wish you feel this pain. Because if you did everything would change. You would act a little faster when someone show’s up in your office complaining of sever pain. Instead of dismissing them like you did to all of us. TOS and RSD suffers come out of your homes, lets all stick together and fight for are rights, we need treatment other then meds. We need doctors who know what this is. So we can stop the pain we live with each and every day. Lets fight Comp, Doctors, and Judges that all disagree; that the pain we feel is not real it’s only make believe. I.M.E. Doctors need to retire, and get new jobs that require liars. SSD and SSI will fight you too, because we are part of the system just like you. Look out all you people we had enough of the TOS and RSD shuffle. If you like you to contact Darlene the author of this story you can e-mail her at: darlenebrownell@yahoo.com
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