International

Reflex Sympathetic Dystrophy Foundation©

"Dedicated To Helping RSD Patients Worldwide"

Eric M. Phillips

P.O. Box 1145

Lakeville, Massachusetts 02347 USA

Phone: 508-946-9888  Fax: 508-946-3338

 

Office Hours

Monday through Friday

9:00 A.M. to 5:00 P.M. EST

 

Please view the following new topics: The Management of CRPS, Movement Disorders, Principles of Addiction, New Topics, Spread of CRPS, The Infusion Pump: Clinical Observation, Spine and the Autonomic Nervous System, Bone Scan and CRPS, CRPS and SCS, Dr.Ellen G. Wattay's Updated Manual for the Diagnosis and Treatment of RSD/CRPS I, Clinical Contribution To CRPS I, RSD Poems, RSD Stories, Clinical Trials: Lenalidomide in the Treatment of Complex Regional Pain Syndrome Type I, CRPS and Sympathectomy, The National Disease Research Interchange (NDRI), Next Step O&P, Stages of CRPS/RSD, and Thermography Abstract.

Home Background About RSD Stages of CRPS/RSD RSD Puzzles #1-146 Management of CRPS Spread of CRPS Movement Disorders Principles of Addiction The Infusion Pump Spine and ANS Bone Scan and CRPS CRPS and SCS Cryotherapy Venipuncture CRPS Thermography Abstract Thermography Part - I Thermography Part- II Nerve Block Abstract CRPS - Sympathectomy Microcirculation Clinical Contribution On-line RSD Survey Printable RSD Survey RSD References RSD and Pregnancy Social Security Ruling RSD and SSDI Clinical Trials Dental Referrals Photonic Stimulator RSD Medical Articles RSD Articles List RSD Article #1 RSD Article #2 RSD Article #3 RSD Article #4 RSD Article #5 RSD Article #6 RSD Article #7 RSD Article #8 RSD Article #9 RSD Article #10 RSD Article #11 RSD Article #12 RSD Article #13 RSD Article #14 RSD Article #15 RSD Article #16 RSD Article #17 Anatomy Sketches RSD Manual For P.T.'s Medical Journal Links In The News Support Group Info RSD Events Links Language Translator Updates E-mail Search RSD Poems RSD Stories RSD Tissue Research Next Step O&P RSD Info Request Form New Topics Todd Rundgren Thank You!

 

On-line RSD Survey Form

(Please use the printable version if you are having problems with this on-line version)

 
 

International Reflex Sympathetic Dystrophy Foundation©

 

Dear Friends:

I would like to thank you in advance for taking the time to fill out this very important survey regarding Reflex Sympathetic Dystrophy (RSD) (CRPS). This survey will help us find some answers to the very puzzling problem we call RSD (CRPS). All information that is collected from this survey will be placed into a data bank. This may take sometime to finish, but I do hope within the next few years I will be able to send you the results of this ongoing survey study.  This survey is voluntary. All information will be used in a confidential manner and you will remain anonymous.

I would like to thank you for your time and help with this very important project.

Sincerely,
Eric M. Phillips
President
International RSD Foundation
P.O. Box 1145
Lakeville, Massachusetts 02347-1145 USA

 
If you have any questions or comments about this survey, please feel free to contact me at 508-946-9888. You can also fax or e-mail me your questions or comments to the following:
Fax: 508-946-3338
EricmP9512@AOL.com
Utopia33@Prodigy.net


 
*Please Note: If you have a problem filling out this survey form please go to the link for the "Printable RSD Survey", and you will be able to print out this same RSD Survey.  After you print it out, please fill out the form and return it to me by snail mail to the address above. Thank you. :-)
 

This survey is designed to help us get a better understanding of how RSD (CRPS) affects each individual and what treatments help and which  do not help in the management of Reflex Sympathetic Dystrophy.

 

 

 

 

Name (Optional):

E-Mail Address :

Age:

 M F

 

Please note: It may be necessary to hold your Ctrl key down while clicking with your mouse to select multiple options.

 

1. How did you develop RSD?                                (If other: Please tell us how you developed your RSD)

 

2. When did you develop symptoms of RSD?

 

 
3. Where do you have your RSD?
 

4. How long have you suffered from RSD?

                                                                                                 

 

5. What method was used to help diagnose your RSD?
If other (Please describe)
 
 
 
6. How long after injury or surgery were you diagnosed as having RSD?  
 
                                              
 
 
7. Please check any of the following symptoms that you have had along with your RSD.
 
Abdominal Pain 
Atrophy
Back Pain
Bruising
Cardiac Disturbance
Depression
Dizziness
Discoloration of Skin
Dystonia
Facial Pain
Falling Spell
Hearing Disturbance
Headaches
Heartburn
High Grade Fever
Hot Flashes
Hyperpathia
Hypertension
Immune System Disturbance
Internal Organ Disturbance
Limited Mobility
Loss Of Sex Desire (Libido)
Low Blood Pressure
Low Grade Fever
Memory Disturbance
Menstrual Irregularity
Migraine Headaches
Mood Swings
Movement Disorder
Muscle Contractions of the Fingers or Toes
Muscle Spasm
Osteoporosis
Pelvic Pain
Rapid Hair Growth
Rapid Hair Loss
Rapid Nail Growth   
Rapid Nail Loss
Rash
Severe Fatigue
Shoulder Hand Syndrome
Skin Lesion's (Skin Ulcers)
Sleep Disturbance
Stomach Ulcers
Sweating
Swelling (Edema)
Tremor
Vasoconstriction
Visual Disturbance
Weight Gain
Weight Loss
 Others
 

8. Please check any of the following treatments listed below, that you have tried. Please select one of the following answers if these treatments increased or decreased your RSD symptoms and if these treatments were a success or failure in your quest for pain relief. If not sure select "Undecided".
 

Acupuncture 

Amputation         

Application of Heat

Application of Ice       

Arthroscopy

Bio-Feed Back    

Carpal Tunnel Surgery       

Chemical Sympathectomy  

Chiropractor  

Cingulotomy      

Cordotomy  

Cryosurgery

Disc Surgery

Exploration 

Fusion Surgery    

Homeopathy

Hydrotherapy     

Hypnosis Therapy

Infusion Pump      

I.V. Mannitol   

Ketamine Treatment

Knee Surgery  

Laser Surgery

Magnet Therapy  

Micro Surgery  

Nerve Graft

Neurectomy

Occupational Therapy (O.T.)

Phentolamine Test

Physical Therapy (P.T.)

Psychotherapy

Radiofrequency Treatment

Removal of Neuroma

Rhizotomy

Rib Resection

Rotator Cuff Surgery

Spinal Cord Stimulator

Sympathectomy (Surgical)

Sympathetic Nerve Block

Tarsal Tunnel Surgery

Tendon Release

TENS Unit Treatment

Ulnar Nerve Release

Ultrasound

Others (Please describe)

 

9. Please check any of the following medications listed below, that you have taken to help treat your RSD. Please select one of the following answers if these medications increased or decreased your RSD symptoms and if these medications were a success or failure in your treatment of RSD. If not sure select "Undecided".      PLEASE NOTE * (GENERIC NAME)
 
Ativan (Lorazepam*)     
Baclofen (Lioresol*)      
Buprenorphine (Buprenex*)  
Butorfranol (Stadol*)     
Calan or Isoptin (Verapamil*)    
Catapres (Clonidine) (Oral or Patch*)  
Dalmane (Flurazepam*)
Demerol (Meperidine*)       
Desyrel (Trazodone*)          
Dibenzyline (Phenoxybenzamine*)   
Dilantin (Phenytoin*)      
Dilaulid (Hydro Morphone)  
Elavil (Amitriptyline*)       
Flexeril (Cyclobenzaprine*)
Halcion (Triazolam*)     
Haldol (Haloperidol*)  
Hytrin (Terazocin *)     
Inderal (Propranolol *)
Klonopin (Clonazepam*)  
Lodine (Etodolac*)
Lidoderm (Lidocaine Patch 5%*)
Lortab
Methadone    
Mexitil (Mexiletine*)
Minipress (Prazosin*)        
Morphine
MS Contin (Morphine Sulfate)
Naprosyn (Naproxen*)
Neurontin ( Gabapentin*)
Noropramin(Desipramine*)
Nubain
Pamelor (Nortriptyline*)
Paxil (Paroxetine*)
Percocet
Percodan
Procardia (Nifedipine*)
Prozac(Fluoxetine Hydrochloride*)
Relafen (Nabumetone*)
Restoril (Temazepam*)
Soma (Carisoprodol*)
Talacen
Tegretol (Carbamazepine*)   
Tofranil (Imipramine*)
Tranxene (Clorazepate Dipotassium*)
Ultracet (Tramadol HCI*)
Ultram (Tramadol Hydrochloride*)   
Valium (Diazepam*)
Vicodin
Xanax (Alprazolam*)
Zanaflex
Zoloft (Sertraline Hydrochloride
Zonalon Cream
Zostrix (Capsaicin*)
Others (Please describe)
 

10. Please list below the names and amount of the medications that you are currently taking.

 

11. If you are currently taking Methadone for your RSD, have you had any of the following side effects? (If you are not taking Methadone please skip to question 18).

 
12. While taking Methadone have you had any blood testing done to check the toxicity levels of the Methadone in your system?             
                    
 
13. Please tell us what other medications you are currently taking along with Methadone. (Please describe)
 
 
14. How long have you been taking Methadone?
                                                                                       
 
15. How many milligrams of Methadone do you take each day?
 
 
16. Has Methadone increased or decreased your RSD pain?                                                                                    
 
      
17. Prior to taking Methadone did you ever take Morphine or M.S. Contin?                                                                                                                            
 
18. Since you developed RSD have your sleep patterns changed?     
If , so do you sleep more or less now since you developed RSD?     
 
    
19. How many hours a night do you sleep?
 
 
20. How is your ability to concentrate on things that you feel are important to you? 
 
 

21. Do you ever have a feeling of a electrical jolt in your affected extremity?                                                                                                                           

22. Have you had problems with your balance since developing RSD?                                                                                                                               

23. Have you ever been told by any doctor that your RSD is in your head and that you are crazy?                                                                                                                           

 

24. Has your RSD spread since the time of onset?                               

 

25. If your RSD has spread from the time of onset, please tell us how long that it took for your RSD to spread.   

 

26. Did your RSD spread after surgery?                                             

 

27. Did your RSD spread after ice application?                                   

 

28. If your RSD did spread from surgery, please describe below what type of surgery you had.

 

29. Did your RSD spread after application of cast?                      

 

30. At the time of onset was the skin temperature in your affected extremity hot or cold?

 

31. Have you developed any type of deformity or contractures in your affected extremity?                                                                                                   

 

32. If you have developed any type of deformity or contractures, please tell us how long it took for the deformity or contractures to start after the onset of your RSD.                                                                          

 

33. Where do you have your deformity or contractures . (e.g., fingers, hands, foot, toes)

 
34. Have you had any amputations of your affected RSD extremities or digits?                                                                                                                        
 
 
35. If an amputation was performed, please tell us below what extremity or digit was amputated.
 
 
36. If an amputation was performed, please tell us below if it increased or decreased your RSD pain.
 
 
37. On average, how many points (zero to 10) pain improvement did you have after amputation?
 
 
38. Since the time you were diagnosed with RSD, have you ever been diagnosed with any of the following disorders:

Arthritis
Bursitis
Carpal Tunnel Syndrome
Chronic Fatigue Syndrome (CFS)
Cervical Spondylosis
Clonus
Diabetes
Dystonia
Fibromyalgia Syndrome (FMS)
Frozen Shoulder Syndrome
Lupus
Migraine Headaches
Multiple Sclerosis (MS)
Myofacial Pain Syndrome
Phantom Limb Pain (PLP)
Scleroderma
Spinal Disc Disease
Tarsal Tunnel Syndrome
Tendonitis
Thoracic Outlet Syndrome (TOS)
TMJ
Trigeminal Neuralgia
Ulnar Nerve Entrapment
Others
 
 

39. Please check any of the following, if they increase your RSD pain.
Others:

 

40. Are there others in your family who also suffer from RSD?    
If so, please tell us how many family members also suffer from RSD.

 

41. If you have had a Spinal Cord Stimulator implanted, please tell us if the SCS has increased or decreased your RSD pain.

 

42. How many Spinal Cord Stimulators have you had implanted?

 

43. Have you had any of the following complications with your Spinal Cord Stimulator: Others:
 
 
44. On average, how many points (zero to 10) pain improvement did you have with the (SCS) Spinal Cord Stimulator?

 

45. If you have had an Infusion or Morphine Pump implanted, please tell us below if the pump has increased or decreased your RSD pain.

 

46. Have you had any of the following complications with your Infusion Pump. Others:

 

47. Do you take pain medication by mouth in addition to morphine in the pump?   (Please describe):

 

48. On average, how many points (zero to 10) pain improvement did you have with the pump? 

 

49. How long did your SCS or Infusion pump work before you started to have complications?  

 

50. Have you had a Surgical or Chemical Sympathectomy?       

 

51. If a Surgical or Chemical Sympathectomy was performed did it increase or decrease your RSD pain.

 

52. Have you had any of the following complications after having the Surgical or Chemical Sympathectomy performed? Others:

 

53. How long did your Surgical or Chemical Sympathectomy give you pain relief before you started to have complications?   

 

54. On average, how many points (zero to 10) pain improvement did you have after Surgical or Chemical Sympathectomy?

 

55. Please check any of the following types of Nerve Blocks that were used to treat your RSD. Others:

 

56. How many Nerve Blocks have you had since you started your treatment for RSD.

 

57. Please tell us if your pain increased or decreases after having any of the above mentioned nerve blocks.

 

58. How many hours, days, weeks, or months did you have relief after having any of the following types of nerve blocks:

58a. Axillary Nerve Block:   


58b. Bier Block:  


58c. Brachial Plexus Block:   


58d. Epidural Block: 


58e. Lower Lumbar Block:  


58f. Paravertebral Block:  


58g. Stellate Ganglion Block: 

 

59. How is your activity level after having a Nerve Block?

 

60. Have you had any complications from having a Nerve Block?
(Please describe)

 

61. If your RSD developed from a Venipuncture, please check one of the following procedures that caused your RSD. (If this question does not pertain to you please skip to question 62) Others:

 

62. When did you experience pain from your venipuncture injury?

 

63. Have you had any of the following complication from your venipuncture injury? Others:

 

 

64. Do you ever have any of the following symptoms on your skin in the RSD affected extremity? Others:

 

65. Do you ever have sudden attacks of falling?  

 

66. If you do have sudden attacks of falling, please tell us how often.

 

67. Please tell us below what your occupation was at the time of onset.

 

68. Are you still able to work?   

 

69. How many doctors did you see before you were diagnosed with RSD?

 

70. If your RSD was caused by surgery , how long after surgery were you diagnosed as having RSD?   

 

71. What type of doctor diagnosed your RSD?

 

72. Has your RSD ever gone into remission?                                     

 

73. If your RSD has gone into remission, please tell us at what stage of RSD you were in at the time of remission. (Please see the list of examples below):

Stage I -Dysfunction (Burning pain)


Stage II -Dystrophy (Skin and nail changes and edema)


Stage III -Atrophy (Disuse)


Stage IV -(Disturbance of immune system. Lack of response to treatment)

 

74. If your RSD did go into remission, please tell us how long you were
in remission.  
 

 

75. Please tell us below, what treatment or method helped your RSD go into remission.

 

76. Has your RSD gone into remission more than once since your onset of RSD?                                                                                                              

 

77. What helps you more heat or cold or both?

 

78. Was your RSD aggravated after the application of ice?                 

 

79. Was your RSD aggravated after the application of a cast?         

 

80. Do you suffer from any of the following disorders other than RSD: Other:

 

81. If your RSD developed from an Electrical Injury, please check one of the following injuries that caused your RSD.

 

82. Was your electrical injury an industrial or household injury?          (Please briefly describe below what happen during your electrical injury.)

 

83. How long after your electrical injury were you diagnosed as having RSD?
 

84. Was your RSD caused by a chemical burn?                                    

 

85. If your RSD was caused by a chemical burn, please briefly describe what type of chemical caused the burn.

 

86. How long after your chemical burn were you diagnosed as having RSD?               

 

87. Was your RSD caused by an infection?                                  

 

88. Please describe what type of infection caused your RSD.

 

89. How long after developing your infection were you diagnosed as having RSD?
 

90. Have you developed any herniated disc since you developed your RSD?                                                                                                                       

 

91. Please check any of the following assistive devices that you use.
 

92. How long have you been using these assistive devices?

 

93. Has there been any one doctor or pain clinic that has had any success in treating your RSD?                                                                                                                    

 

94. If your RSD was successfully treated, please list below the name and address of your doctor or the pain clinic that treated you.

 

95. Would you recommend your doctor or the pain clinic that you go to for treatment to other RSD patients?                                                                                                        

 

96. Do you have a good support system with your family and friends?                                                                                                                          

 

97. Do you find that your family and friends have a hard time understanding what you are going through since you developed RSD?                                                         

 

98. Was the Internet helpful to you during your quest to obtain information regarding RSD?                                                                                                                              

 

99. What State or Country do you live in?

 

100. Do you belong to an RSD Support Group?                                     

 

*Please Note: If you have a problem filling out this survey form please go to the link for the "Printable RSD Survey", and you will be able to print out this same RSD Survey. After you print it out, please fill out the form and return it to me by snail mail to the address above. Thank you. :-)

©1997 Eric M. Phillips, International Reflex Sympathetic Dystrophy Foundation

The material on the IRSDF Homepage and all its associated, linked or reference pages is for informational and education purposes. It is not meant to take the place of your physician. Before starting, changing, or stopping any treatments or medicines consult your physician.
Eric M. Phillips, and Associates will not be held liable for any damage or loss as a result of information provided on this page or associated documentation. Again, this WEBSITE is simply published as an information source and should not be used to treat or make judgments on RSD. All material owned by others, that is distributed or published on this website, disk media, facsimile or copied through electronic or photographic means has been done so with the permission of the owner or author. Any and all material published in error, will be immediately removed or corrected upon notification of such. The IRSDF organization title known as the "International Reflex Sympathetic Dystrophy Foundation" and all associated material on this website may not be copied, reproduced or quoted without expressed written permission from the owner;  Copyright  ©1996-
2012 Eric M. Phillips- Last Update 5/8/2003