International RSD Foundation

"Dedicated To Helping RSD/CRPS Patients Worldwide"

Links

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This section of our website is dedicated to RSD related links, RSD support group information, RSD events, RSD book information and many other helpful resources.

RSD Related Links

Dr. Hooshmand’s website: www.rsdrx.com

Dr. Hooshmand’s website is filled with the most informative information regarding RSD/CRPS. On this website you will find an abstract of the review article of 824 CRPS/RSD Patients that was published in Pain Digest (1999) 9:1-24. You will also find abstracts and full text article regarding Thermography and many other topics. Also, you will find 146 of the ever -popular RSD Puzzles© written by Dr. Hooshmand.

Here are some of the topics that you will find in the RSD Puzzle© section of this most helpful website:

What is RSD/CRPS, Spread of CRPS, RSD in Children, Dangerous Treatments, and Four F's Diet.

 

RSD Dental Referral’s

Here is a list of Dentists who treat and understand RSD/CRPS and TMJ/TMD.

Mark A. Piper, D.M.D., M.D.

111 Second Avenue NE

St. Petersburg, FL 33701

Phone: (727) 823-3220

http://www.tmjsurgery.com

Pamela Steed, D.M.D.

St. Vincent’s Professional Building

8402 Harcourt Road, Suite #724

Indianapolis, IN 46260

Phone: (317) 338-6464

http://www.pasteed.com

Published Articles

Steed PA: The utilization of contact liquid crystal thermography in the evaluation of temporomandibular dysfunction. Cranio, 9: 120-128 1991.

Steed PA: The longevity of temporomandibular disorder improvements after active treatment modalities . Cranio, 22(2): 110-4  2004ᅯ

M. Jeffery Morton, D.M.D.

520 Strokes Road Rt. 541

Medford, NJ 08055

Phone: (609) 953-0050

Published Articles

Morton MJ, Pitel ML :Reflex Sympathetic Dystrophy Syndrome Complicating the Management of TMJ Symptoms. A Case Report. J of Craniomandibular Practice, 7 (3): 239-242 1989.

*Please note: The International Reflex Sympathetic Dystrophy Foundation is not affiliated with any of the above-mentioned Dental Professionals listed on this page. This information is simply published as a general information source only.

 

RSD Events

This section of our website is where will post any up-coming RSD events that will be taking place around the RSD community.

Please check back soon for more updates.

* Please note: The International Reflex Sympathetic Dystrophy Foundation is not affiliated with any of the above-mentioned events listed on this page.  This information is simply published as a general information source only.

 

RSD Support Groups in the United States

 

Illinois

Support Group Contact Information:

Edwina Schaeffer, President 

Phone: 630-665-0717

e-mail: edwinaschaeffer@sbcglobal.net

 

Kansas

Support Group Contact Information:

Lisa Coan

Phone: 913-685-2626 

e-mail: lisakcoan@yahoo.com

 

Minnesota

Support Group Contact Information:

Bonnie Scherer

Phone: 952-447-4930 or 

952-457-7586 

e-mail: RSDSMN@aol.com 

www.rsdsmn.org

 

 Ohio

Support Group Contact Information:

Susan Diamond

Phone: 614-805-4239

e-mail: Sediamond57@yahoo.com

Cindy Lowe

Phone: 937-387-6687  

Phone: 937-387-6687 

e-mailcloweS339@aol.com

 

Rhode Island

Support Group Contact Information:

Heather Mello, Group Coordinator

Phone: 401-996-1612 

e-mail: hmello@cox.net

 

RSD Support Groups in other Countries

Israel

Support Group Contact Information:

Dorit Drori

e-mail:ddtravel@ddtravel-acc.com

 

Netherlands

Support Group Contact Information:

Dutch Association of Posttraumatische Dystrofie Patients

http://pdver.atcomputing.nl/

If you would like to have your support group information and meeting dates listed on our website.

Please e-mail me at: Utopia33@Prodigy.net

Please note: The International Reflex Sympathetic Dystrophy Foundation is not affiliated with any of the above -mentioned support groups listed on this page.  This information is simply published as a general information source only.

 

Thermography Links

American Academy of Thermology                                                

http://aathermology.org/

THERMOLOGY INTERNATIONAL
(formerly EUROPEAN JOURNAL OF THERMOLOGY)

http://www.europeanthermology.com/cms32/index.php?THERMOLOGY_INTERNATIONAL

New England Clinical Thermography, Incorporated                   

www.nemedtherm.com

 

Next Step Bionics & Prosthetics

As, a recent amputee I had the great pleasure and honor to meet Peter Couture, CP, President and Clinical Director of Next Step Bionics & Prosthetics located in Warwick, RI.

I met Peter prior to my amputation for a consult. Peter took the time to discuss my options that I may have after having an amputation. Since my case is not your typical amputation case due the fact that I suffer from Reflex Sympathetic Dystrophy (RSD). My amputation would be a little bit different for many reasons:

1. How would my RSD react to the amputation? Would the amputation cause my RSD pain to get worse?

2. How would my stump react to wearing the prosthetic?

3. Would I be able to stand or even take my first steps in more than 20 years?

Peter, took the time to listen to all my concerns and fears about having an amputation. Peter and his staff have made me feel so comfortable and confident that everything that I am doing will work out well for me.

Well, I must tell you that it has over 10 years since my surgeries (August 25 and 27, 2008). I had to have a two-stage amputation due to the infection in my left foot. On November 12, 2008, I  was able to stand without the use of my crutches and I took my first steps in more than 20 years.

I, now recall the first meeting that I had with Peter. He told me that he would have me walking the first time I put on my new leg. Well, I must tell you that he was 100% right.

It has been more than 20 years since I last walked on two feet. With the help of Peter and his staff, I am able to take my Next Step in life.

I can't thank Peter and his staff enough for all their help and support. You all have made my life so much better.

All my Best!

Eric M. Phillips

Please visit Next Step's website at:

http://www.nextstepbionicsandprosthetics.com/

 

Medical Journal Links

BRITISH MEDICAL JOURNAL                                                          

http://www.bmj.com/

FREE MEDICAL JOURNALS.COM                           

http://www.freemedicaljournals.com/

NEW ENGLAND JOURNAL OF MEDICINE                             

http://content.nejm.org/

 

Medication Links

Needy Meds website is designed to provide information about patient assistance programs which provide no cost prescription medications to eligible participants.

http://www.needymeds.com/

 

Medical Equipment Links

The American Medical Resources Foundation takes donations of used, functioning or repairable medical equipment and medical supplies are needed for shipments to charitable hospitals and clinics in developing countries. All equipment is inspected, tested and repaired by professional biomedical personnel before shipment. You can help us with equipment and supplies from your hospital or company. If you are considering selling or otherwise disposing of your medical equipment that you are replacing or not using, please consider donation.

Please remember that AMRF is a 501(c)(3) corporation. Your donation of equipment and supplies may be tax deductible. AMRF can arrange for pick up and transportation of donated materials that have been accepted.

http://www.amrf.com

 

Other helpful Links

American Pain Foundation: http://www.painfoundation.org/

Clinical Trials: http://clinicaltrials.gov/

Disabilitysecrets.com provides tips, advice, explanations and answers to your Social Security Disability and RSD questions.

http://www.disabilitysecrets.com/social-security-disability-rsd.html

 

Unrelated Links

Todd Rundgren

In this section of our website is a place where I would like to share with you the musical side of my life. The music of Todd Rundgren had gotten me through the past 33 year of many hard times in my life since I developed RSD.

Todd's music has helped me cope with living with my RSD and the many surgeries that I had to have over the past 33 years including surgery to have my left leg amputated in August of 2008.

I can't thank Todd enough for all the great music that he has created over the years.

I must say that Todd is a wizard a true star!

Please click on the link below to view information and pictures regarding Todd Rundgren in PDF-format.

Todd Rundgren Information

 

The Artist Corner

This section of our link page is dedicated to RSD patients who are Artist.

Please click on the link below to view some wonderful art work created by a very talented Artist by the name of Catherine Lee Neifing.   http://www.catherinelee.com/index.html

 

Freddie’s Fabulous Hawaiian Teriyaki Sauce

If you are like me and want to cook and eat healthy, please try this wonderful Hawaiian Teriyaki Sauce. This is the best Hawaiian Teriyaki Sauce I have ever tried in my life. It is only 20 calories per Tbsp and it is very low in sodium, only 43 mg. I use it every night when I stir-fry. Once you try it you will be hooked!

Happy Cooking!

Eric

Please visit Freddie's website at: http://www.hawaiiansauce.com/index.html